- We want to ensure that research for adults with cerebral palsy reflects the needs and interests of people living with cerebral palsy. We believe that involving adults with cerebral palsy in your research will strengthen its quality and relevance.We have an advisory group of adults with cerebral palsy and an advisory group of health professionals working with adults with cerebral palsy who can support you with your research in a number of ways including:
- Commenting on applications for research funding or research proposals
- Advising you on the most appropriate methods to use to conduct your research
- Reviewing your study documents such as information sheets, questionnaires and topic guides
- Sitting on a study steering committee or a study advisory group
- If you would like to request support from our advisory groups please contact us by completing this form.Please provide specific information about the support you require such as the time commitment required, how you intend to communicate with members of our panels (e.g. by phone or in person), and how you can support
members of our advisory panel (e.g. by providing training on the study design, by keeping them updated on the study findings). Please also tell us if your research is funded and if you are able to reimburse members of our panels for their expenses or time.We contact members of our advisory groups monthly to inform them of opportunities to advise on research studies. Therefore, as it may take 4-6 weeks to be put in contact with a member of an advisory panel, please ensure you allow sufficient time to obtain feedback on any application.
You can find further information on how to involve the public in research on the Involve website.
The Adult Cerebral Palsy Hub is keen to develop partnerships with researchers to set the research agenda and ultimately drive better understanding of cerebral palsy in adults. Some of our ongoing partnerships are listed on the Research Partnership page. If you would like to explore developing a research partnership with the Adult Cerebral Palsy Hub please contact us by completing this form.