Adult Cerebral Palsy Hub’s Conference addresses “What does good practice look like for Adults with Cerebral Palsy”, held Friday 8th November 2019

Our inaugural conference was held on 8th November 2019, a unique event bringing together over 60 delegates from the medical and allied health professions, alongside researchers, members of CP related charities as well as members of the adult CP community for discussions around the implementation of the adult Cerebral Palsy NICE Guidelines and sharing examples of best practice.

The conference was titled, “What does good practice look like for Adults with Cerebral Palsy”.  Below are the presentations from the day.

Integrating research and practice – Showcasing examples of services where innovators are already thinking about doing things differently.

  • Dr Valerie Stevenson from The National Hospital for Neurology and Neurosurgery discussing developing an Adult Cerebral Palsy Service (link)
  • Mr Andrew Roberts from The Robert Jones and Angus Orthopaedic Hospital covering Orthopaedic Surgery in Adults
    With Cerebral Palsy (link)
  • Dr Jenifer Ryan Research Lecturer at the Royal College of Surgeons in Ireland and a Senior Lecturer in the Department of Clinical Sciences at Brunel University London and research team presenting on their latest studies with Adults with Cerebral Palsy (link)
  • Andrea Clarke MBE, Paediatric Physiotherapist and director of Play skills who shared her model of transition (link)

Panel discussion: Bringing the NICE Guidelines to life. Leading practitioners sharing their experiences of treating adults with Cerebral Palsy, their reflections on current practice and how it can be improved.

  • Dr Umesh Chauhan, GP and Professor in Primary Care at the University of Central Lancashire (link)
  • Dr Stephen Bianchi, Consultant Adult Respiratory Physician Sheffield Teaching Hospitals NHS Foundation Trust (link)
  • Susan Hourihan, Clinical Specialist Occupational Therapist at The National Hospital for Neurology and Neurosurgery, Queen Square, London where she is a part of the adult cerebral palsy and neuro-disability multi-disciplinary team (link)
  • Mr Marcus Bankes, Consultant Orthopaedic Surgeon, Guy’s and St Thomas’ NHS Foundation Trust (link)

The atmosphere throughout the day was really positive with lots of great conversations and connections.

Emma Livingstone, founder of Adult Cerebral Pasly Hub commented that  “As a charity we are endeavouring to bring people together and create the space for conversations around Cerebral Palsy. We believe that by sharing experiences and demonstrating how practice can and could be done differently, we can galvanise support and begin to change what people imagine is possible. We hope delegates left the conference feeling like things could and should be different and with the idea that if they think about it, and talk about it, things can change.”

We would like to thank Irwin Mitchell and the The Vernon, May and Joyce Cohen Charitable Trust for their support in making the conference happen.