Promoting better medical services for adults with Cerebral Palsy
Adults with CP are treated like second class citizens when it comes to healthcare. We are asking the Government to ‘stamp out’ healthcare inequality and conduct a review into the care of adults with CP. We want the 2019 NICE guidelines adopted and put into practice across the NHS to improve the lives of the 130,000 UK adults living with Cerebral Palsy. In short, Care Parity for CP.
Adult CP Hub has been established to create a home for adults with Cerebral Palsy and put their needs at the forefront of the minds of the medical and research community.
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Staying active is so important for the #CP community. Combining exercises with regular monitoring and maintenance will help the community live their best lives!
March is CP Awareness Month and we have launched our #StampOutTheGap campaign, aiming to stamp out the gap in healthcare provision for adults with CP vs those with other life long conditions.
Read the Press Release here and find out more about the campaign and who is supporting us
Our Founder Emma Livingstone was interviewed for the weekly brave, bold, sometimes bloody-minded BRAVE NEW YOU TRIBE “Stories from the Edge” podcast. Listen to the podcast here.
Diagnosed at 2 with cerebral palsy, Emma was discharged from medical services at 16, being told that she was the best she would ever be. But she found her physical problems increased in adulthood, without any integrated care from the authorities. So she started a charity to help those in the adult CP community who like her, were struggling to get the right kind of help.
Host Lou Hamilton talks to Emma about her passion for positive change, her tenacity, her ability to own her condition and her drive to create a community that receives more recognition and support.
